Yea it was sheer torture.
My family DR. did her best but many of the things we tried didn't work. At least by the time I did get to the pain clinic I already knew what didn't work.
Lady Lee
JoinedPosts by Lady Lee
-
34
U.S. Chronic Pain Patients -- No More Pain Meds
by Lady Lee inthe american pain foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.. with deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, apf must cease to exist, effective immediately.
on may 3, 2012, the board of directors formally voted to dissolve the organization.. the board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational.
unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.. apf hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.. your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years.
-
-
-
34
U.S. Chronic Pain Patients -- No More Pain Meds
by Lady Lee inthe american pain foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.. with deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, apf must cease to exist, effective immediately.
on may 3, 2012, the board of directors formally voted to dissolve the organization.. the board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational.
unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.. apf hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.. your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years.
-
-
Lady Lee
Band I agree. If I stopped one of my pain meds by tonight I would be insane by 2 am. And that isn't even an opioid. But the opioid is the only thing that will stop it at that point.
-
34
U.S. Chronic Pain Patients -- No More Pain Meds
by Lady Lee inthe american pain foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.. with deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, apf must cease to exist, effective immediately.
on may 3, 2012, the board of directors formally voted to dissolve the organization.. the board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational.
unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.. apf hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.. your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years.
-
-
Lady Lee
rebel years ago I worked on a drug rehab and prescription drugs were a huge problem.
Many oatients are scared to use the, I know I was. But after years of unremitting pain I had to learn when to use them and not wait until the pain was unmanagable.
Is the article in mnt is probably not alone in reporting higher rates of opiod drug use or in their warnings. Over and over I was told by my pain Dr that if pain is managed well I had nothing to fear about the use of the medication he prescribed. Fo rme it is my back-up when nothing else works. But when I have several days when nothing else works I do begin to worry.
If some Drs are overprescribing that is a whole other issue than insurance companies failing to pay for th emegs.
I just know I am very lucky now and hope it stays that way.
Band I totally agree that the recognition of the need for effective chronic pain management is light years ahead of where it used to be. The biggest problem I had was getting into the pain clinic where they were willing to experiment with what worked for me. I certainly didn't like the side-effects of many of the medications they tried but in the end we found what works for me. Sadly it took me 3 years to get through the waiting list.
-
34
U.S. Chronic Pain Patients -- No More Pain Meds
by Lady Lee inthe american pain foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.. with deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, apf must cease to exist, effective immediately.
on may 3, 2012, the board of directors formally voted to dissolve the organization.. the board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational.
unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.. apf hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.. your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years.
-
-
Lady Lee
tresdecu
The article came to me from the yahoogroup I belong to. She just found the info so to us it is new. And for people who live with uncontrolled pain the fear of meds being withdrawn is scary.
My doctors at the pain clinic are very aware of the issues of uncontrolled pain and the meds required to deal with it. I consider myself very lucky to have found a combination of med s that works for me most of the time. But when it doesn't I have my opiod medication to break the uncontolled pain cycle so that the other meds can do their job.
I am very concerned about becoming addicted to the opiod drug. I take it as little as possible which means I have to be very aware of my body and when the pain it escalating and I now try to stop it before it gets to that point. Without that one little pill that I need maybe once or twice a month I would be in terrible pain all the time. Once it has escalated I can't get it to stop with other methods. None of my doctors are afraid that I am becoming addicted. But they do caution me. In reality I am far more worried about addiction than they are. They know how rarely I need to renew the prescription.
My doctor's office has a huge sign that they will not prescribe opioids to patients they don't know. Addiction is an issue as is getting the meds to sell to others.
I hope that none of you who do suffer from uncontrolled pain don't have to suffer as a result of bad insurance policies that might restrict the very meds you need to make life bearable.
-
34
U.S. Chronic Pain Patients -- No More Pain Meds
by Lady Lee inthe american pain foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.. with deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, apf must cease to exist, effective immediately.
on may 3, 2012, the board of directors formally voted to dissolve the organization.. the board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational.
unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.. apf hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.. your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years.
-
-
Lady Lee
The American Pain Foundation has closed its doors due to lack of funding and a growing hostile environment towards those who suffer with chronic pain.
With deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, APF must cease to exist, effective immediately. On May 3, 2012, the Board of Directors formally voted to dissolve the organization.
The Board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operational. Unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.
APF hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.
Your personal experiences in living with pain and seeking compassion, empathy and medical care – often against the odds -- have driven our efforts over these many years. This includes enactment of key provisions of the National Pain Care Policy Act in the Health Reform Bill that led to a landmark report issued in 2011 by the Institutes of Medicine. This report documents the shocking numbers of US citizens that live with pain and calls for immediate changes to address gaps in care. Despite this, the current climate towards improving the plight of people with pain in the US continues to be precarious and hostile.
As you unfortunately know, the need for public outcry around the needs of Americans struggling with pain conditions is greater today than ever before in light of the multi-front assault occurring daily on our right to dignified care. Misguided state and federal policies are impeding access to appropriate and reasonable medical care for people struggling with pain, and deterring even the most compassionate medical providers from treating anyone with pain conditions.
It is therefore critical that each of you raise your voices singularly and together to demand the care you deserve. It is only by continuing to demand attention to the ever-worsening barriers and unacceptable suffering that change will occur.
Elected officials, policy makers, and the media need to keep hearing from each and every one of you so they are not allowed to walk away from the consequences of this over-looked public health and medical problem. Please know that although APF will cease to exist, the resolve and commitment among individuals on the Board and staff remain strong.
http://www.painfoundation.org/
Medical News Today reports:
Such findings are noteworthy as the U.S. Food and Drug Administration (FDA) and some states mull limits to opioid prescribing as a means to halt a rising tide of prescription drug abuse and overdose deaths. An FDA panel held a two-day public hearing in February to gather stakeholder testimony as it weighs labeling changes for opioid dosage, indication and treatment duration for noncancer pain.
http://www.medicalnewstoday.com/releases/259020.php (last paragraph)
I cannot imagine how any of you will manage. I suffer from chronic pain. Most of the time it is controlled by the non-opoid meds I take. But every now and then the pain soars and nothing will touch except an opioid med. I suffered for years with intractable pain. Life was just misery waiting for the next break in the pain. My heart goes out to you if you wind up losing the meds that make your lives liveable.
-
9
Is this co-dependancy or just plain stupid?
by hoser inmy grandpa was a slobbering abusive drunk.
he treated my gramma like shit.
he was also abusive to his two children, my father and his sister, my aunt.
-
-
Lady Lee
exactly designs. What we come to realize is that we are getting precious little for the amount that we give. I'm not talking about the future and the paradise (which they seem to be building out at Patterson). It is about real love. As JWs we were kept so busy doing the "kingdom work" that the whole concept of showing real love to one another was missing. Yea we could go to the hall and smile nicely and shake hands and talk about the talk (Wow wasn't that a great talk today? I got so much out of it." when really we were dozing off or thinking about the grocery list. We could pick up people and take them to a meeting and take them home but that is simple stuff.
What about really helping the sick? Or the fatherless children? (not just study with them. I used to arrange picnics and invited everyone until they put a stop to that. Things like basic socialization were severely stunted and that kept everyone codependant.
-
9
Is this co-dependancy or just plain stupid?
by hoser inmy grandpa was a slobbering abusive drunk.
he treated my gramma like shit.
he was also abusive to his two children, my father and his sister, my aunt.
-
-
Lady Lee
Children have a need to be cared for. From the time they are born they are dependant. When a child learns the only way to survive is to take care of the person who is supposed to be caring for them it sets the stage for a life-time of codependency. In many ways it is Stockholm Syndrome. To survive you have to align yourself with the people who are holding you captive - your parents.
To gain approval you give them everything they want. But it is never enough because the approval, support and acceptance is never granted or even worse is granted on an irregular basis. That makes the child more determined to gain approval. Eventually some realize that there is only one thing that the parent wants from them and if it wasn't given you would never see them again.
If you ask this question: "Would I bend over backwards, deprive my children of things if this person was not related to me?"
If the answer is, "No way", then you can begin to disentangle yourself from them. But old patterns can be hard to break and it takes a lot to realize that person is incapable of giving you what you needed as a child and what you need as an adult. It takes more courage to act on it and stop the codependency.
-
535
AAWA is here!! (The Association of Anti-Watchtower Activists)
by cedars inhttp://www.youtube.com/watch?v=fcic4g5tulw.
http://www.jwactivists.org.
facebook the association of anti-watchtower activists.
-
-
Lady Lee
First my apologies to those of you who were added to a group without your permission.
The only thing I can say is that some people got enthusiastic and must have been clicking on the names that were "suggestions" instead of waiting for requests to join.
There are several Facebook groups now based on the various needs and goals of the group. I have started 2 and NO ONE will be added to them without permission both ways. Mind you I am in charge of the recovery and support issues so confidentiality is almost a given there. It will be respected. Both groups are "secret" so no one will even see them unless they are invited and accept.
Other groups are open or private. If you have been added to any type of group whether it is an AAWA group or some other group you deserve to be respected. So again my apologies for the overenthusiasm of people in adding you to the group. Believe me no one meant to offend even by suggesting that you leave the group.
I will however bring this issue up to the board and to the group where this happened if it hasn't already been addressed.
-
535
AAWA is here!! (The Association of Anti-Watchtower Activists)
by cedars inhttp://www.youtube.com/watch?v=fcic4g5tulw.
http://www.jwactivists.org.
facebook the association of anti-watchtower activists.
-
-
Lady Lee
Simon I locked by request of Cedars I had made a post about that but I guess it got lost along the way
-
16
What,s a dysfunctional family in your opinion???
by jam injust recently a family i know well (non-jw) big problems.. i thought my family (my ex and my kids) and other jw family.
members were dysfunctional but no comparison to this family.. i have known families that became jw,s, their famliy were.
dysfunctional but in a strange way their family became strong.. my thought , if you have one child that goes amok that ,s not.
-
-
Lady Lee
I hear you all loud and clear and wow no we didn't have a chance to grow up in a normal of functional family. Our growth was stunted. But it doesn't have to stay that way.
cobalt that was one thing I was so concerned about as a mother. I didn't want to pass on all that abuse to my children. I succeeded in some ways (my kids weren't sexually abused) and I never called them names the way my parents did but as per WT "beat them with the rod of disipline" I failed. They got spanked. Interestingly that stopped as soon as I was no longer a JW.
Now I see my daughter with her children - they have never been spanked. In 2 generations we have turned around the abuse from at least 3 previious generations and who knows how far back it goes.
My mother was abusive before she became a JW. The WTS just gave her Godly permission to beat the crap ou tof us.